Just hours after Lewis Mataczyna was born in Canberra, he was flown to Sydney wrapped in cotton wool.
He was diagnosed with a rare and serious form of epidermolysis bullosa, which meant his skin could tear apart at the slightest touch or bump.
Since then his life has been a lot different from other kids his age, often missing out on the everyday joys of childhood.
He has had frequent operations including procedures to open his throat so he can eat and drink and he is very susceptible to infections.
Read the full story here.
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